A documentary from Parkland’s own: ‘It’s Not a Burden’

Directed by Michelle Boyaner and produced by Parkland resident Wendy Zipes Hunter, “It’s Not a Burden: The Humor and Heartache of Raising Elderly Parents” is a deeply intimate documentary that follows its director as she serves as the primary caretaker for her elderly parents, Elaine and Morris. Each parent struggles with their own battle incited by old age, with Elaine suffering from dementia and Morris being a hoarder.

Morris Boyaner in IT’S NOT A BURDEN
©2021 Greenie Films

Supplementing her own personal story and composing the majority of the film is a composition of around 20 vignettes, each telling their own story of adults providing care for their elderly parents. Each vignette features a retrospective of each parent’s life, an account of their current struggles, and occasionally an update on the family’s story. 

Boyaner’s impetus for dedicating such a considerable portion of her documentary toward other people’s struggles instead of her own is to convey the film’s central message. 

Coming directly from Boyaner, the message of this film is, “You are not alone. If you are somewhere in the midst of this journey, helping your parent/parents, you are not alone. Look at the people in this film, all walks of life, navigating their own version of the same thing. You are not alone.”

Frances Moore & Cynthia Moore in IT’S NOT A BURDEN
©2021 Greenie Films

In each story, including her own, it is an uphill battle against old age. Boyaner is frank in showcasing that elderly care is often embarrassing and melancholy, for both parties.

However, as Boyaner presents, no one family is solitary dealing with the strife of old age. Although each family struggles, they prove strong in the face of life’s great equalizer, and they are able to see the final time spent with their loved ones as a blessing rather than a burden.

Below is a portion of my interview with Boyaner.

Q. What kind of philosophy or belief system do you believe people should take into the final stages of their lives?

A. I relied very heavily on the book “Being Mortal” by Atul Gawande, as it explores the last stages of life through personal stories and focuses on quality of life. I highly recommend this book (you should see my copy, it’s marked up like a textbook).

Q. After filming, did you do any follow-ups with the families you interviewed?

A. We have kept in touch with many of the families we met with for “It’s Not a Burden,” and although “follow-ups” are not contained in the film, we have been in touch. The bulk of the filming with the other families was from 2016 to 2019, so unfortunately some of the parents have now passed away, and we’ve been in touch with families as they have grieved their losses. We also continue to celebrate milestones with those who are still with us.

Q. During filming, was it ever difficult for the people you interviewed to talk about their circumstances?

A. Every family who opened their homes and their hearts to us were taking a chance. They were honest and vulnerable and shared stories about their own experiences that they hoped would help other people. Those we spoke to were truly heroes and we are so grateful to them for trusting us with their truths and knowing that what we were creating was going to become something to help.

Q. What is your favorite memory with your mother?

A. I have certain memories, snapshots of simpler times from very early in my childhood that stand out as magical with my mother. In more recent times, it has just become a montage of all the time we spent — as you see in the film — out on adventures, running errands, just being together.

Q. Do you have any advice for anyone who is currently going through something similar to what you experienced?

A. My advice is really contained in the film: Let’s try harder to regard each other. To take a minute. To spend the time. To be patient. To listen. To not just see an older person as their age or their ailment but realize that they’ve lived a whole life filled with memories, and they’re still here, and it’s vital that they have a sense of purpose.

Vickie Pierre: ‘Be my herald of what’s to come’

Vickie Pierre: ‘Be my herald of what’s to come’

For New York-born and Miami-based artist Vickie Pierre, there’s more to come. At the age of 51, Pierre is just hitting her stride.

Vickie Pierre: ‘Be my herald of what’s to come’

With a solid portfolio and major accomplishments under her belt, Pierre is currently focused on generating new works. Her current pieces on display at the Boca Raton Museum of Art are a continuation of the work she has done since her college years at the School of Visual Arts in New York City.

Her work has been exhibited at Foundation Clement in Martinique and Centro de Documentación para las Artes Visuales and Galerie Oriente in Cuba. She has exhibited at the Little Haiti Cultural Center and the Diana Lowenstein Fine Art Gallery in Miami and the Art and Culture Center in Hollywood, Florida. In 2019, she was a finalist in the Orlando Museum of Art Florida Prize in Contemporary Art. 

In 2016 Pierre caught the eye of both Irvin Lippman, CEO of the Boca Raton Museum of Art, and Assistant Curator Kelli Bodle, when she was brought to their attention by Miami-Haitian artist Edouard Duval-Carrié, who was exhibiting at the museum. He flagged her as an up-and-coming artist in the Miami art scene.

“Vickie draws from her parents’ penchant for European interior design, evident in the French colonial influence on Haiti,” says Bodle. 

Pierre uses resin wall plaques, ornate wall sconces, vintage Avon glass perfume bottles, wooden shelf sconces and ship bookends, jewelry, and hand-strung glass beads to create her visions. She deconstructs the perfume bottles from the 18th, 19th, and 20th centuries and reintroduces them as anthropomorphic shapes set against monochromatic backgrounds. The headless forms are no longer recognizable as the fairy-tale mistresses they once were. 

Vickie Pierre: ‘Be my herald of what’s to come’

Her piece titled “And Though I May Have Lost My Way, All Paths Lead Straight to You” uses the reenvisioned perfume bottles, flaxen hair from dolls, galleon ships representing the slave trade, bracelets, cuffs, and jewelry, all interconnected by long strands of beads that she strings herself in various patterns.

Pierre’s work encompasses evocative titles such as “I Can’t Say No to You (Good Enough),” “Totems for My Sisters (We Are All Illuminous!),” and “You’ve Stolen My Heart and It Hurts Me to Remember.”

“When Vickie exhibited her piece ‘Elemental Mistresses (The Power of 3)’ [also in this exhibition] at the museum in 2016, I found the sculpture beautiful, with its grand sweeps of beadwork and ornate sconces,” Bodle says. “It was also quite haunting by virtue of the elegant script (‘This Must Be the Love They Speak of’) transcribed on the wall.

“The world craves authentic, genuine people and experiences more than any faux polished façade. Vickie and her work come from a place of earnestness and authenticity.

“These attributes, paired with skill and effectual presentation, make for great art,” Bodle says.

The current exhibit is Pierre’s premiere solo museum show and one of which she is immensely proud.

“This is a significant milestone in my career,” says Pierre. “It is a tremendous opportunity and a great achievement for my work to be introduced and showcased in the Boca Raton Museum of Art, to be enjoyed by the local public as well as visitors from around the world.

“My work exemplifies who I am and what I’m trying to do,” she says from her studio in Miami’s Fountainhead. “I have a love of the fantastical and whimsical but also incorporate history, identity, and the concepts of womanhood and femininity.”

Indeed, Pierre turns pop-culture feminine icons such as Snow White and Cinderella on their head, deconstructing them à la Hans Bellmer, a German surrealist artist and photographer best known for his series of life-sized pubescent female dolls (poupées).

Pierre questions the influence of history and popular culture on identity. “My continued focus is on the exploration of identity and ethnicity, with references to design and nature, as well as connections between my Haitian heritage and the Caribbean as well as broader global cultural mythologies,” she says.

In 2020, after the social justice movements, Pierre created “Black Flowers Blossom (Hanging Tree),” as a way to honor the souls of people lost to racial injustice, including George Floyd, Breonna Taylor, and Ahmaud Arbery, among others. This piece is also included in the show.

Vickie Pierre: ‘Be my herald of what’s to come’

She describes her creative process as “easy,” doing a lot of sketching and what she calls “navel-gazing.”

“I’m always reworking, cutting, and pasting,” she says. “I let the ideas marinate and my execution is superfast.”

The child of medical professionals and immigrants from Haiti, Pierre says she was raised to be 100% American. She grew up in Crown Heights, Brooklyn, in a mixed neighborhood playing with people of all different backgrounds and religions.

“This inclusivity fostered my vision to reach for the universal,” she says. “I strive for a global ideal.”

In addition to Bellmer, Pierre counts Duval-Carrié, Canadian-American artists Miriam Schapiro, and Betye Saar as influences, who also worked with assemblage to explore the myths and stereotypes around race and femininity.

In 2016, Pierre committed full-time to her artwork. “It was sink or swim, and everything came together,” she says.

When asked what drives her, Pierre reflects.

“I feel this is my destiny; I’m doing exactly what I’m supposed to be doing and I am where I’m supposed to be,” she replies. “I’m excited and amazed. Everything in my life has led me to this point.”

The exhibit runs through Sept. 5. For more information, visit bocamuseum.org.

The show must go on: Barclay Performing Arts

With a great-grandmother who was a showgirl and George White Scandal dancer (Broadway revues modeled after the Ziegfield Follies) who appeared on the cover of Vanity Fair magazine, and a family steeped in musical theater, it’s no wonder that Christine Barclay founded the Barclay Performing Arts theater in 2016 as a way to honor her late father, John Barclay.

John Barclay was a director, educator, actor, and founder of the Weston Drama Workshop in Weston, MA.

“My dad was an amazing director who always found a way to bring out the very best in each and every person, whether on the stage or behind the scenes,” remembers Christine Barclay.

It is to his memory and passion that she dedicates herself and her work. “There’s no better person to be the beacon for this theater in Boca Raton,” she says.

“My dad created confident, articulate young people and made a big difference in the lives of his students,” Barclay says. “I hope to do the same.”

The theater, located next to T.J. Maxx in the Somerset Shoppes in Boca Raton, helps students of all ages find their voice, creativity, and confidence. Before moving to this location, Barclay worked out of the Boca Black Box theater on Glades Road. 

Her opening production, entitled “Spring Awakening,” is forever etched in her mind.

Pregnant with her now 3-year-old daughter Caroline and about to give birth in February 2018, the tragedy occurred at the Marjory Stoneman Douglas High School in Parkland. Many of the MSD students were performing in the production.

“The cast decided to move forward with the show,” recalls Barclay, who by that time was on maternity leave. “It was one of the most unbelievable experiences of my life.” 

“To watch these kids travel to the White House, meet with then-President Barack Obama, then board a red-eye back to Boca for rehearsals, all while mourning their friends, was just incredible,” she says.

“I’m so proud of their survival and the emotional, physical, and mental resilience of our team and that of the community,” Barclay says. “Getting through those shows after the tragedy and giving birth was a moment that fully made me realize my responsibilities.”

“I wanted to ensure my company was there to support these kids and to transition to a space with a purpose and mission to change the world,” she says.

“We want to be a community center where kids and others can come to feel safe and have a platform in which to express themselves.”

Before relocating to Florida in 2012, Barclay was the executive assistant to Marc Tumminelli, founder of the Broadway Workshop in New York City, and she was a resident member of the theater faculty for the Rodeph Sholom School in Manhattan. 

She performed, directed, and choreographed for many theaters and schools, including the Kew Forest School and the Looking Glass Theatre in New York. In addition to acting, she has directed, choreographed, stage-managed, and performed in numerous productions in New York, Florida, Massachusetts, Maine, and Pennsylvania.

During the pandemic, Barclay produced 10 virtual, live-streamed performances including “Schoolhouse Rock,” “Fame Jr.,” “Band Geeks: The Musical,” and the concert version of “Guys and Dolls.”

She is currently in production for “Peter Pan,” “Urinetown: The Musical,” and “Willie Wonka.”

“We worked just as hard during quarantine as we did previously,” says Barclay, who in addition to her 3-year-old is raising three stepchildren.

Lewis Singer, 53, a chiropractor at Singer Family Chiropractic in Boynton Beach, had his first acting role 22 years ago in “Sweet Charity” at the Lake Worth Playhouse when he played the hippie preacher, known as “Big Daddy.

Fast forward to 2015, where Singer was in the audience at the Barclay theater to support some acting friends, when he noticed one of their upcoming shows was “Fun Home,” the first Broadway musical with a lesbian protagonist, which won five Tony Awards including Best Musical that year.  

“I knew I had to be a part of it,” Singer remembers. He had seen the road show in Tampa and says “to my shock and disbelief, I landed my dream role of the father, Bruce Bechdel. This is the role of a lifetime.”

“I fell in love with Christine and fell in love with the mission of her theater,” says Singer, who also sings and plays keyboard in an ’80s cover band called Livin’ the 80s.

“She’s amazing, and her vision and mission of caring for the community using her theater as the vehicle for this are amazing as well. There is nothing I wouldn’t do for her,” he says.

Barclay is working with the nonprofit Find Your Voice Foundation, a social enterprise company that gives creative companies a voice with which to share their story with the end goal of establishing their own theater and venue. She hopes the theater will be a gathering place for people in the community.

“If anyone feels like they’re missing something in their life, a spark of interest, motivation, friendship, or someone to hug, somewhere to walk in a door and sit down and be exactly who you are, we’re the space for you,” Barclay says. “You don’t need to be on Broadway. If you need somewhere to be and be the best version of yourself, we’ll find a space for you.”

“We want to be a ball of light for our community,” says Barclay.

For more information, visit barclayperformingarts.com.

Apprehensive about back to school? Here are some tips

Rustle up the school supplies, lunchboxes, and backpacks: It’s time to head back to school! Whether it is in a virtual environment or in-person, transitioning to a new school year can be nerve-wrecking for anybody. But for neurodiverse groups of students — kids who have autism, attention deficit/hyperactivity disorder, learning disabilities, intellectual disabilities, or mental health conditions — going back to school is a huge shift in routine after a long summer break, or even after a year of showing up over Zoom. 

 

About 1 in 7 people is neurodivergent, so a lot of people with cognitive differences and unique learners have additional things that might be making them worried about starting a new school year.

As an adult on the autism spectrum, I know the fear and anxiety that comes with a new transition all too well, especially in school. No matter whether I was getting ready for first grade or my final year of law school, there was always a feeling about starting a new school year after a relaxing summer at home or following a summer internship. 

See, I thrive off of routine, as do many other autistic people, and a small change in routine can be very overwhelming. I am used to my time being scheduled a certain way, and returning to the classroom was something that was scary and exciting because there were new teachers, new expectations, and also potentially new social situations that I would find challenging. Or, for older students headed off to college, they might be grappling with newfound independence or realizing (like I did) that they didn’t know the difference between the dorm washing machine and dryer and ending up with warm, soapy clothes.

For neurodiverse students and their families who are returning to school in-person for the first time post-pandemic, it can be strange to meet teachers and classmates again after over a year apart from one another. Some may also be losing access to things that made school easier: more breaks, time at home, snuggling pets, or recordings and captions to best keep up with lessons and homework. 

To help ease some of the anxiety, here are a few tips that work well for me and other neurodiverse groups to feel grounded and successful, especially in places like school and college.

  1. Talk to the school and teachers. If you or your child has an individualized education plan or receives accommodations, you’ll want to figure out what that looks like in a post-pandemic world so the opportunities to succeed are there. Sometimes, this is also the best way to establish a predictable schedule or routine.
  2. Realize transition can be tough. You don’t have to pretend transitions are easy. For some parents, it might be the first time their child leaves home to go to school or is moving away for college. Be empathetic — parents and children alike might be a little nervous about what’s to come once the summer ends. And it’s OK to open the conversation with everyone in the family, sharing something small like “it’s OK, it’s hard for me too.” This might make everyone feel more connected, especially young people who might feel isolated or emotionally withdrawn.
  3. Make time for hobbies. This goes for the students and their parents. While homework, college applications, caregiving responsibilities, jobs, or extracurricular activities can take up a lot of time, think about what brings joy into your life. For autistic and neurodivergent people especially, our hobbies bring nearly obsessive amounts of joy and passion into our lives, so having time to spend with those interests helps us decompress (for me, that’s drawing, painting, writing, and playing video games).
  4. Make time for family and friends. Everyone needs a support network of people who love and care about you, especially if you’re feeling anxious about upcoming life changes. Family and friends are usually only a hug, phone call, or text away and can lend support. If you need more serious mental health care, there is no shame in receiving help from a professional who can give you some new coping strategies.

No matter how you feel about the new school year, or if you have other differences and challenges that make returning to school or a semblance of “normal” feel difficult, you aren’t alone. Everyone has complex feelings about beginning new chapters, but in the end, it is a journey and there are people cheering you on and in solidarity with you every step of the way. 

Growing up with vaccines: a parents’ guide

School doors open soon, and concerned parents should be aware of vaccinations required to protect their children. A vaccination schedule begins long before a child is ready for school — as early as the newborn stage of life. 

Newborns do not have mature immune systems, and they’re particularly susceptible to certain infections under 3 months of age,” said Matthew Penson, M.D., a pediatrician at Children’s Medical Association in Coral Springs. “During this period, they receive partial immunoglobulin immunity via breast milk, yet it’s advisable not to take a newborn into a crowded environment.”

According to Dr. Penson, appropriate immunizations are a vital component of preventive care and one of the most rewarding aspects of being a pediatrician. “We lay the groundwork to protect a child’s health in the earliest stages, so once they do begin school they’re properly immunized against infections,” he said.

Getting Ready for School 

Learning and socializing enhance growth, but this can only be accomplished in a classroom free of illness. Parents need to check off all the boxes regarding their child’s health and schedule an appointment with a pediatrician to ensure that all required vaccinations have been received. 

Because influenza viruses constantly change, and the body’s immune system becomes weaker with age, flu vaccinations are a necessity. “As children prepare for kindergarten, booster shots are required between the ages of 4 and 5 to strengthen their immune response,” Penson said. “The flu remains a leading cause of pediatric morbidity and hospitalization, and it’s highly contagious in a day-care or school setting. We recommend starting at 6 months with yearly repeat vaccinations in the fall, no later than October.”

For older children, tetanus, meningococcal meningitis, and HPV vaccines are recommended beginning at the age of 11 and up. Parents should discuss all recommended vaccines with a pediatrician and understand their importance, risks, and benefits. Pediatricians at the Children’s Medical Association care for children and young adult patients up to the age of 21.

Importance of Vaccinations

Vaccinations provide immunity before a child is exposed to other diseases. The American Academy of Pediatrics and the Advisory Committee on Immunization Practices recommend a vaccination schedule as early as 2 months to guard against pertussis (whooping cough), pneumococcus (meningitis/bacteremia), polio, rotavirus, and Hemophilus influenza B (epiglottis, meningitis). 

“Several boosters are required to ‘train’ the immune system to recognize and combat those potentially serious illnesses,” said Penson. He says boosters are required at 4 and 6 months, and when children are a year old, the finishing boosters are given. 

The varicella vaccine guards against chickenpox, a contagious illness that can include blisters, fatigue, and fever. It can be even life-threatening, especially in babies and older adults who have weakened immune systems. To protect against this illness, the varicella vaccine is used (two doses, at 12 to 15 months and 4 to 5 years of age).

Measles, mumps, and rubella (MMR) are also highly contagious. Measles is caused by a virus forming in the mucus glands of the nose and throat. It may cause a high fever, rash, runny nose, and red eyes. In some cases, diarrhea and ear infections are also possible. Very severe cases may lead to pneumonia and even brain damage. Mumps is a virus that spreads via coughing and sneezing. Its warning signs include fever, headache, muscle ache, fatigue, and loss of appetite. The MMR vaccine is given at 12 to 15 months and 4 to 5 years. During the first year, the hepatitis B vaccination is given to provide lifelong immunity. 

The COVID Factor

A decrease in COVID-19 infections is heartening, but stressing the value of vaccinations to eligible ages continues to be important. “As children return to school, we expect to see a rise in both typical childhood illness and COVID-19 infections,” commented Penson. “Severe COVID cases among children are relatively rare (compared to the elderly), but it’s important that pediatricians remain vigilant.” 

According to Penson, parents should expect to see a rising number of upper-respiratory infections, influenza, and strep pharyngitis. Differentiating common illnesses from COVID is difficult, and if parents have questions, they are encouraged to call a pediatrician immediately.

Traveling

With the return of increased domestic and international travel, proper immunizations are vital. Most destinations do not require more vaccines than typically given by a pediatrician, but there are certain locations that have more complex requirements. The travel vaccinations can be accessed by going to the Center for Disease Control’s travel website, or you can inquire about them with your pediatrician. Infants 6 through 11 should have one dose of MMR prior to traveling abroad. Some locations recommend the hepatitis A vaccine, others require malaria medication (prophylaxis), and others recommend the meningococcal vaccine.