How my child’s battle with cancer prepared our family for the pandemic

Thirteen years ago my life changed overnight. I was happily living a normal routine. Then, suddenly, I found myself in constant worry. I was fearful of financial ruin. I was having constant concern of a family member’s failing health, and anxiety of the possible effects to a compromised immune system.

I found myself feeling safer in isolation. I went down a rabbit hole of unpredictability checking numbers, incessantly wiping down surfaces, washing hands, and applying for social services like food stamps after losing my job.

Back then, the numbers I was checking were not the daily percent of positive tests for an invisible illness in my community or the number of local hospitalizations.

The numbers were of the different blood cells my son had. The illness that he had was not invisible. In fact, it could be seen under a microscope in a regular blood sample because it appeared black. It was cancer. He was only 6 years old, and I was 26.

The whole world was not experiencing it with us at that time. Although some 300,000 families experience it annually, we still felt like the only ones.

The journey started in May of 2007. Seven years later, my son
was done with chemo and cancer free.

During those seven years he endured more spinal taps, bone marrow aspirations, blood transfusions, and needle pokes than I could ever count (or want to).

He also went through a relapse, six fractures to his spine, a blood clot, and a stroke.

The journey was tiring, scary, and forever life-changing.

What I didn’t expect in the years following his recovery was how useful all that I learned would become.

All the heartaches and lessons I learned during that time would become a road map for navigating a future health crisis: The COVID-19 pandemic.

A year ago, in March 2020, we all were plummeted into a whole new world. To me, however, the landscape looked familiar.

I discovered that I was equipped to navigate it. Through my experiences I had garnered some tools in dealing with uncertainty and crisis. I want to share the top 10 with you.

Find Joy- I found during those hard times that joy seemed to elude me. I was submerged in worry and sadness. It took a while for me to recognize that in the toughest of times you must work at finding joy.

When you look for beauty, you will find it, and once you do, beauty and joy will naturally find you.

Show Gratitude & Appreciation-They say nothing is a better teacher than experience, and I would add nothing makes a person wiser than proper perspective.

Finding gratitude was hard at fi rst, but suddenly I became grateful for the little things that became big things to me; little things like a smile or laugh from my sick son, his immune system being strong enough to visit friends, or the gourmet coffee shop at the hospital. The minute I started learning to appreciate and have gratitude for the little things everything changed.

Be Flexible- Life will take you down paths you never predicted or saw coming. The lesson learned is that control is an illusion and hanging on to habits that once made sense, but do not anymore, will only make change that much harder to adapt to. Be willing to learn new things. Adapt your schedule, and go with the flow.

Create Fun- This is so important. Get creative. When my son was unable to go to movie theaters, attend parties or restaurants, we, as a family, brought the fun to us.

My parents started creating movie nights for him and his brother, and expanded them into themed movie nights.

There are no rules that say you need a bunch of people to throw a party! You
can throw a party on an easy budget with just your immediate family.

Since the pandemic, we started this again. We have thrown over 20 theme nights at home with just us that include costumes, dinner, and a movie, all  around a central theme.

Nothing is Forever- The best of times will not last, which could be a depressing thought, until you realize that also means the worst of times will not last forever either.

Everything on earth is temporary. EVERYTHING. So, breathe in the good and be present for it, and breathe out the tough times.

Find Stillness and Nature- Find time to meditate, pray, or just count your breaths in and out every day.

Experts say that 20 minutes of meditation a day is optimal. But days can get away from you in a crisis, so if you can only close your eyes and count 10 breaths in and out, say a mantra 10 times, or say a quick prayer to your God, it is more than nothing at all.

Also, even five minutes of observing nature can do wonders. Going outside is preferable, but some days I would only be able to watch the swaying of the trees or clouds through a hospital window. But even that would lighten my spirit enough to bring me some peace.

Ask for and Accept Help if You Need it- Having too much pride can have a devastating consequence on your family and soul. If you need help, ask for it, and if it is off ered, take it. There is no shame in it.

Give Love and Help Others- Nothing will make you happier than helping someone else. There is no medicine as powerful as putting your woes aside and focusing on helping another person. Look around you and see how even in turmoil you still possess the ability to better the lives of those around you,  and then do it.

Find Balance- This is something everyone struggles with in their lives, even without a crisis. It is important. However, it is even more important amid a crisis.

You will not achieve that every day. The important part is not pressuring yourself into perfection of balance, only striving for it over the course of your journey.

If you try to focus on balance without judging yourself for not perfecting it, in the arch of time, you will find you achieved it.

Make Humor a Coping Tool- Of all the tools and lessons learned throughout my life’s journey nothing is more potent a healer than humor.

Don’t take life so seriously because life itself is constantly contradictory, indecisive, and unpredictable. It is a beautiful mess, and so are you. Learn to
laugh about it!

In the end you should accept right now that your life will not look exactly like you envisioned it.

Your life may never be the same after this pandemic. It’s ok and natural to struggle with it. Just know that struggle is how you will grow.

Remember this time of pandemic does not make up the sum of your life. But if you use it as a teacher and look at it with a wise perspective, you may see the time as one of the most valuable of your life. The beauty of it lies in the fact that you get to choose.

Destiny Haggett is an advocate for pediatric cancer research, former model, and public speaker. She currently runs a 962-seat live entertainment venue in Coconut Creek, Florida.

Ask Dr. Renae: In with the new and out with the old

This month’s Ask Dr. Renae column surveys local teens to provide a flavor of how they are welcoming the new year 2021. See for yourself how our future generation has fared and be inspired by their hopefulness.

Out with the old: I will wave goodbye to being practical. I’ve tried to get into the habit of living a more serendipitous lifestyle and I’ve since made very fond memories and have had experiences that I never would have had otherwise.

But don’t lose everything: I will keep my inventiveness and self-reliance. It’s very important to me to retain these characteristics and continue to blossom into the best version of myself.

In with the new: I will look forward to a new way of life with endless opportunities and a plethora of success.

Out with the old: I will wave goodbye to self-doubt whenever I’m hesitant about sharing my opinion in class or with new people. I also will wave goodbye to fear of rejection in all aspects of life. I’ve learned that it’s okay to be rejected. Some people may not think the same as you do and that’s okay.

But don’t lose everything: I will keep the few amazing high school memories with my best friends when I begin to enter a new chapter of my life and attend college. Those memories of jamming out to music in the car or staying out a little too late that I have to speed (not by much) home to make curfew will always make me smile.

In with the new: I will look forward to exciting new adventures that I will experience when I go to college next year and begin setting personal goals in academics, health, and hobbies.

 

Out with the old: As we approach the new year I want to reflect on my current year. I will be waving goodbye to my messy habits and unclean room.

But don’t lose everything: I will definitely be keeping close contact with all my friends and continue our zoom slumber parties.

In with the new: I am looking forward to finishing high school and starting the next phase of my life in college. 2020 was a rough year, but I will try my best to have a more positive 2021.

 

Out with the old: I will wave goodbye to fearing what others might think of me. Often, I try to be the most perfect person when trying to meet new people or even just around some of my close friends. This past year I learned that it’s important to own who you are and what makes you.

But don’t lose everything: I will keep hanging out with my family, my friends, and my dog, who is my entire world. COVID has really brought me closer with my brothers, since they are out of college and staying home for the meantime. I also have such a special place in my heart for my friends and my dog who I love very much.

In with the new: I will look forward to planning for the future. I am a junior in high school and am going to start looking into the college process soon. I have my heart set on going into the entertainment industry and can’t wait to get started. I am so hopeful for my future and can’t wait for the day that I am living in New York City!

 

Out with the old: I will wave goodbye to negative feelings that I have about myself.

But don’t lose everything: I will keep my friends and all of the happy memories I have with them.

In with the new: I look forward to all the amazing things I want to do with my life, especially going to college to get my degree in engineering and to make some more friends while I’m there.

TEENS: Curious as to what other teens would say? If you have a question or problem you would like to present to other teens, please email: askdrrenae@att.net and include your age, grade, and gender you identify with. All questions are published anonymously and your identity and contact information will be kept confidential.

PARENTS OF TEENS: Would you like to anonymously and confidentially ask the panel of teen Peer Counseling Writers to comment on a parenting issue you are struggling with? If you are ready for a variety of honest opinions from real teens, please address your questions to askdrrenae@att.net.

Dr. Renae Lapin, a licensed marriage and family therapist with 40 years experience, currently maintains a private practice in Boca Raton, Florida. For more information about Dr. Renae and her practice, visit her website: https://askdrrenae.com

Musical education not left behind by COVID-19

During the past several months, COVID-19 has been a roadblock for the educational system. This spring, school classes went virtual, and a lot of extracurricular activities were halted in their tracks.

For parents with kids who are learning to play an instrument, the uncertainty with school bands and lack of in-person classes has been an ongoing challenge. One local music teacher is Glen Friedman from the G-Clef Music Academy in Parkland.

Glen has been teaching his students virtually throughout the summer. As schools open, he is planning to continue to teach virtually as this is key to ensuring his students keep up with their curriculums and not fall behind due to this year’s pandemic limitations.

Music strengthens the mind
Why is music education important for developing minds? A study by Professor Hudziak from the University of Vermont College of Medicine found that the “more a child trained on an instrument, it accelerated cortical organization in attention skill, anxiety management, and emotion control.”

According to Professor Hudziak, in an interview with the Washington Post, music is like an exercise for the brain. “What I was surprised by was the emotional regulatory regions. Everyone in our culture knows if I lift 5-pound, 10-pound, 15-pound weights, my biceps will get bigger. The same is true for the brain. We shouldn’t be surprised we can train the brain.”

Music helps with math
Much of Science, Engineering, and Math is built on the principles of harmonics. One key principle, the Fourier Transform, expresses the world in terms of musical chords. Joseph Fourier, in 1822, first showed the usage of infinite sums of harmonics to describe a signal, which the mathematical transform is now named after. Recently, our modern mobile communications mostly rely on the concept of harmonics to transmit information over the air.

Learning music has been shown to benefit students’mathematical abilities. Researchers from the University of Texas, in a peer-reviewed article for the Journal of Learning through Arts, found “the students who learned through the various music-integrated instructional settings demonstrated increased mathematical ability levels over the intervention period in the present study.”

According to Glen, the best way to learn music is through one-on-one sessions. The individual feedback is important to help develop and improve a student’s skills.

During the pandemic, it hasn’t all been virtual lessons. Glen is part of some virtual big band recordings, too. You can find some of those sessions on YouTube’s “Glen Friedman Music”channel.

If you are deciding how best to keep your child busy after school, improve their focus and emotional control, or just want better grades in math, enroll them in music classes. This is where the arts and sciences intersect.

By Li Pan